My PTSD manifesto

Occasionally people who have been traumatized have gravitated to me because I’m open about having experienced a serious trauma and (mostly) recovered, but they don’t seem to realize how deeply their past still affects them. They haven’t done any trauma recovery work, and they show up in my life.

I believe they show up because their unconscious is seeking healing. Or perhaps angels bring these people to me so they can see for themselves that recovery is possible. You know, I don’t mind being a role model for recovery from trauma. I’ve come a long way in 10 years. I’ve worked at it.

It’s not like traumatized people wear signs stating that. The sudden discovery that a new friend or love interest has been traumatized can create a huge amount of distress for me. Even though in hindsight, their craziness now makes more sense (“oh, of course that weird behavior was a trauma response”), it can still really be a shock.

So I just want to put this message out there:

If you’ve been traumatized and feel attracted to me because I’m open about having experienced trauma and having done a lot of work on my recovery, first of all, please tell me clearly and up front (or as soon as you realize) that you’ve been traumatized, emotionally abused, get triggered, have flashbacks or nightmares, are shell-shocked, or whatever history or symptoms are affecting you. There’s no shame in it — you didn’t ask for it. I’d rather know than not, and I just might be able to prevent you from making a big mess when your judgment isn’t very good. I will help you find help and support you emotionally — in a way that is healthy and not co-dependent.

If that’s what draws you to me, just own it. Do not be asking me out on dates and withholding information about your untreated trauma. That’s creepy, and the thing is, you can’t really hide a trauma in your history until you are healed. You may naively think you can, but it seriously disregulates your nervous system and makes it stuck in either dissociation or hyperarousal, sometimes both. Your trauma-related weird behavior will show up in your most intimate relationships sooner or later. Having untreated trauma is like having an elephant in your living room whose shit is piling up.

Secondly, if you’re not getting professional help, please do that — get professional help. And let me know that too, because I’m going to worry about you if you don’t, and I’d rather be happy than worried.

Please do not look to me to help you beyond being a friend and a cheerleader for your recovery work. I am a blogger who’s open about having experienced trauma and having done a lot of work on recovery. This blog (read About me, and do a search on PTSD or trauma to find related posts) describes some of my recovery experiences. Please feel free to ask me about them or try them yourself.

There is absolutely no need for you to just show me your wounds without any warning. Seeing you suddenly be triggered by your past trauma triggered painful memories of my long struggle of not knowing I had PTSD and then finding out, and then spending long months doing some intense processing, healing, and putting my life back together in a new, healthier way.

Your behavior freaked me out badly. It took acupuncture, herbs, and therapeutic assistance to start to get over it (at my expense, I might add, which you have ignored, which also makes me think less of you), and I really don’t trust you now.

After I witnessed your triggering and saw empathically how damaging your experience had been, it hit me hard. I emotionally dropped, rolled, and came up ready for combat. I was so ready to protect … someone … from something! And you had something to do with it.

Recovery from trauma doesn’t mean being bulletproof. It means being more embodied, emotionally present, and energetically open than before recovery, while still being an ordinary person who cannot read your mind. I have more compassion now and am more of a whole person, and I need to set clear boundaries to take care of myself.

It breaks my heart more than you can imagine that the innocent gesture I made triggered fear in you. It’s not anything I take casually or lightly. It’s emotionally disturbing to witness someone with their wires crossed, whose mind mistakes the present for the past, whose mind mistakes someone who has never traumatized them with someone who did.

I wish you’d told me as soon as you knew instead of showing me like that. That would have been important communication. You scared me, once again.

With help, you can heal your poor damaged nervous system and experience more peace and stability and aliveness in your life. I am recommending Somatic Experiencing Practitioners to people these days.

Please find your way to help. I wish you well.

So this is for everyone: if you know that I have had PTSD and you have had untreated trauma in your life, and you come around seeking a relationship, please tell me up front, do your own recovery work (I’ll be rooting for you), and get yourself in decent emotional and relational shape before you expect any intimacy from me, for both our sakes.

I look forward to talking with the healthy you.

Knowing whether you have PTSD, and how it affects you and your relationships

Regular readers of this blog and anyone who has read the About me page knows that I have had PTSD and (mostly) recovered. I’m pretty open about it. I hate that there’s a stigma about having PTSD, or any mental illness, when no one asks for it in the first place. At this point in my life, openness has way more to recommend it than shame and secrecy.

It’s actually an injury that affects the whole bodymindheartspirit.

I also posted about PTSD in November, in Getting over trauma and moving on with your life: some core questions. That post focused on the desire to heal, knowing that you have PTSD.

I’ve posted a lot about the trauma releasing exercises, brainwave optimization, shaking medicine, and other topics related to recovering from trauma.

Recently something happened that triggered my memories of what it was like to have undiagnosed PTSD for a long time and the two years of my life that I spent intensely working on becoming whole and reclaiming myself after I was diagnosed. There were still some holes, but I did feel like I got on top of it enough to function fairly well and keep filling in the holes as my awareness of them arose.

This post is about figuring out whether you have PTSD, what it’s like to have it, and how it affects your relationships.

How do you know you have PTSD? There’s an official diagnosis in the Diagnostic and Statistical Manual of Mental Disorders (DSM-IV, for the current version), a book used by psychiatrists to diagnose mental illness. The official cause of PTSD is this:

PTSD always follows a traumatic event which causes intense fear and/or helplessness in an individual.  Typically the symptoms develop shortly after the event, but may take years.  The duration for symptoms is at least one month for this diagnosis.

I had thought that the definition included something about violence. The current definition does not. I was wrong about that.

If you’re not sure if what happened to you is considered trauma, here’s a definition of trauma:

an event that is life-threatening or that severely compromises the emotional well-being of an individual or causes intense fear

The common denominator is feeling intense fear. Aka terror or horror. Or “severely compromised emotional well-being.”

If you’re not sure whether you have PTSD, ask yourself whether and when you have experienced intense fear in response to traumatic events or whether something happened to you that severely compromised your emotional well-being.

Of course, sometimes traumatized people may not remember a trauma, which is tricky — in PTSD, the memories of the actual feelings associated with a traumatic event are often suppressed (because they were intensely scary the first time).

Timeline work can be helpful. If in reviewing your life, there’s any event that some would consider to be traumatic or severely compromising to their emotional well-being, even if you don’t remember the actual feeling, you might have PTSD. Read on.

Also, ask yourself whether and when you have experienced a sense of helplessness. When you experienced a traumatic event, did you freeze in terror?

If your answer to one or both of those questions is yes, then you don’t need a psychiatrist to know that you probably have PTSD. However, if you’re still not sure, you can judge by your behavior.

How does having PTSD affect your behavior? People who have been traumatized often have flashbacks, in which something in the present situation triggers an emotional reaction from a past traumatic event. For example, someone may innocuously point a finger at you, and you suddenly feel fear because seeing the pointing finger has triggered the memory of someone else pointing their finger at you while angrily heaping emotional abuse on you. Never mind that the current person is not heaping emotional abuse on you and is in fact startled that their innocent finger has made you feel so visibly afraid.

Your past has kidnapped you emotionally.

I only had one flashback similar to that. The main type of flashback or time distortion that I experienced was regressing back to the age I was when my childhood trauma occurred. Sometimes social situations would make me feel like a child amongst grownups. Mostly I was quiet, but sometimes I would say inappropriately childish, immature things.

I could be talking to someone as a mature woman, and suddenly I became an awkward child again. I didn’t realize I was regressing for a long time. I just thought I was socially awkward. But the age I regressed to was usually 11 years old.

I have so loved that traumatized 11-year-old child, hugged, soothed, and comforted her for all the incomprehensible events she experienced, that she feels integrated and doesn’t pop out like that much any more. When people are baffling to me now, I note it, but it usually doesn’t send me back into childhood any more.

With PTSD, you may also have nightmares. I had them for years. Something terrifying was chasing me, and I couldn’t run fast enough, and I awoke feeling intense fear.

The last such dream related to my original trauma was about 10 years ago, when feeling on high alert, I clearly told a serial killer to put the huge sharp scissors down. By confronting him, I had overcome my helplessness.

In fact, a lot of my recovery was about overcoming helplessness. I imagined riding to my sister’s rescue — on a white horse — and blowing away the killer. It didn’t change the past, but it changed the way my nervous system processed that memory so that I felt empowered.

You may live your life avoiding situations, people, and/or objects that remind you about the event, such as avoiding driving after a serious car accident or avoiding someone who who emotionally abused you or who even just reminds you of them.

Another form of avoidance is that you may experience emotional numbness, which is a way of avoiding yourself. Trauma can make people want to isolate themselves. If you inexplicably regressed when socializing, or got triggered, wouldn’t you want to hide? I spent years of my adult life just working, raising my daughter, going to grad school, and being depressed with no social life to speak of.

Your anxiety levels are higher in general, and you may have a heightened startle response, jumping when you hear a sudden loud noise. (I still do this.) You may have insomnia, trouble concentrating, irritability, anger, hyperarousal.

In my opinion, people can experience anxiety, avoidance, and nightmares without necessarily having PTSD, but having flashbacks is unique to PTSD, as far as I know. If anyone knows different, please comment.

How does PTSD affect relationships? PTSD affects the relationships you value most — intimate relationships, with family, lovers, and close friends. You may be difficult to get close to. You may fear closeness and decide to move on when someone is becoming close, or others may distance themselves from you if you shut down emotionally.

You may have difficulty listening and making cooperative decisions. You may carry a sense of betrayal or grievance into nonabusive relationships. You may be blaming, punitive, passive aggressive, dissociative, cold, insensitive, insulting, under- or overreactive emotionally, and behave in other ways that make you a difficult, frightening,  or unpleasant person to relate to. Working out problems may seem impossible.

If you have it, I’m sorry for the suffering you’ve experienced. Really truly sorry you suffered in the first place, and that it continues. Finding out you have PTSD is not fun, but at least you have an explanation for your baffling behavior and can start your journey toward health.

I can only advise you that once you suspect you have it, get counseling as soon as possible. Get counseling as if your life depends on it, because the quality of every day of the rest of your life and the quality of your most valued relationships actually does. Go to the best counselor you can find.

I also recommend brain wave optimization to normalize your brain waves after trauma.

The post-PTSD life, the joy, the friendships and close relationships that await you, the presence, the freedom — I cannot tell you how good life can be.

Go for it. You’re worth it.

Getting over trauma and moving on with your life: some core questions

I was revising the About Me page of my blog recently, the page where I tell you guys that I’ve mostly recovered from PTSD.

It occurred to me that if I shared a little more about that, it might be very, very useful to someone. PTSD is becoming more common, unfortunately.

What I’m coming to understand now is that it’s not so much what you specifically do to recover, although some ways of healing work better than others.

The bottom line is that you have to want to heal in order to heal. And nothing outside of you can get that wanting for you. It has to come from within, that desire to heal. You begin intending to heal, and healing begins to show up, and from then on, it’s a self-perpetuating cycle. It may be one step forward, 9/10th of a step back, but the spiral has begun.

Others can influence you to expand in that direction, though. For instance, believing it’s possible to heal. Some traumatized people are not in an environment where they hear that message. Sometimes everyone else has been traumatized, and no one has any resources to help. Some people have erected internal defenses that protect them from really hearing that message because suffering has become such a part of their identity that giving it up might leave a frightening void. Who would you be without your story? How can you intend to heal if you don’t believe it’s possible? 

Sometimes just knowing that another person has done it can make it possible for you. I can just encourage you to know that it’s possible to recover, to explore and discover, and use joy and expansion as navigation tools. Use your brain, too. 

What would it take for you to believe that recovering from trauma is possible for you? 

Honeys, so this is the thing about healing from trauma or loss: At some point, you realize that you’ve given enough of your life to suffering about that past event, and you’re still alive and likely have a good number of years left. What do you want for yourself? What do you really want? 

You can ask yourself these key questions:

  • Who would I be if that hadn’t happened to me? For sure, I’d be a lesser person if I had not suffered. At the same time, I grieve because it took me so long to get over it, to even know that I had PTSD and that I even could get over it. I cannot get those lost years of my life back, which makes my life now so much more meaningful. In the years I have left, I intend to make up for the lost time and be as happy and alive and myself as I can be. And, it is worthwhile to imagine your life if you hadn’t been sidetracked by trauma. What would you have gone on to do? I imagine that if I had really had the courage and confidence to develop my skills when I was a young woman, I might have gone to New York and worked in publishing and writing. So…guess what? I’ve worked in publishing and writing not in New York, and blogging was unimaginable back then. In some strange way, experiencing trauma did not derail my life as completely as I thought.
  • What gifts has your suffering brought? Although everyone’s story of suffering is different from mine, I do have a clue about how hard life can be, and it gives me a lot of compassion for people’s suffering, from war, famine, natural disaster, genocide, the many cruelties and tragedies that we all know exist and that some of us have experienced up close and personal — and the way these terrible events can influence beliefs about oneself, one’s fellow humans, and life in general, beliefs that can perpetuate the suffering, sometimes for generations.
  • How has your suffering shaped you? Knowing that one of the worst things that can happen — if you haven’t read About me, the brutal murder of my young sister when I was a child myself at a time when no one knew anything about PTSD — has already happened has helped me to have more courage. I spent years waiting for the other shoe to drop, and then one day I realized it probably never would. And…if it does, guess what? I have experience with trauma and now know so much better how to move through and beyond it.
  • If you choose not to have PTSD, where do you go from there? I recall a day after I had been diagnosed with PTSD, when I realized I didn’t like having it one bit. I actually was pretty clueless about it then. It was like being diagnosed with any incurable condition. I remember thinking to myself in a very surly manner that I want to beat the shit out of PTSD with a baseball bat. I didn’t ask for this, and I don’t want it! The mainstream psychiatric thinking (i.e., Judith Herman, DSM) back then, a mere 10 years ago, was that PTSD was incurable. Once you have it, you always do. Well, a lot has changed — notably, the work of Peter Levine and David Berceli showing that trauma resides in the body and can be released, and brain wave researchers finding signature brain wave patterns for PTSD that can be changed with brainwave optimization. I had to accept that the PTSD was in me, not outside of me, and if I were going to beat the shit out of it, I’d have to beat myself up! And I didn’t want to beat myself up in any way any more — which left me with this option: I’d need to somehow become sane and healthy. I gave up focusing on anyone but myself. I stopped blaming (including myself), and I put my heart and mind and body and spirit into examining and changing and updating my identity and map of reality. Not that that’s ever done and fixed. Now, I’m not immune to trauma. No truly alive person could be because being truly alive means being vulnerable. But I believe I could move through it now and not become stuck there, which is what PTSD is. Stuckness. Developing flexibility is the antidote.
  • What unknown joys await you? Yeah, I know. If you’ve experienced trauma, you may not be able to imagine them now, but they do lie waiting for you to want to experience them. You can just make a space for them now, and sooner or later, they will show up — maybe in your dreams at first, and then in your waking life. For me now, many of my joys are about relating to other people and connecting with them and loving them as deeply and unconditionally as I am able, being appreciated and recognized and accepted for who I am, and being able to use my gifts and talents to be of service in this world.

Serendipitously, a friend just emailed me this Native American quote:

Give thanks for unknown blessings already on their way.

These are just some thoughts I wanted to share with you guys today. I imagine I will have more thoughts on this topic, so please stay tuned. And of course, your feedback and comments are welcome.

What if the human species became really good at recovering from trauma and even preventing it when possible? What kind of world might we live in?

Trauma/stress, sleep, and brainwaves

I have several friends who have a hard time sleeping. Could be falling asleep or staying asleep. They go through long periods of not sleeping well.

I’ve been through several of those periods myself, although not lately. I empathize with how the lack of a good night’s sleep negatively affects everything the next day — energy, alertness, performance. I feel their pain.

I’ve already mentioned that I take most of the supplements recommended in the appendix of Buddha’s Brain. I feel better than I’ve felt in years.

I honestly don’t know how good I can feel, and I’d like to find out!

When my contract job ends in 6 weeks and I can make this a priority, I intend to get my brainwaves optimized.

Here’s a link to an article, Your Brainwaves On Sleep. The author writes about the particle (chemical) and wave (brainwave) approaches to sleep.

On the particle side of the debate, there is ample experiential evidence and scientific studies that demonstrate that chemical activity in the brain can profoundly alter sleep tendencies. Many foods, medicines and other substances are well known to have promotional or inhibitory influences on sleep. Furthermore, studies have demonstrated the existence of sleep-regulatory substances, which, after accumulating in the cerebrospinal fluid of an organism and then being injected into another one, can induce the state of sleepiness.

Wave approaches to sleep focus on its cyclical aspects. A focus on wave aspects has intrinsic appeal, since sleep itself comes and goes regularly in healthy individuals. On this side of the debate, researchers have shown, for example, that there is an extra dose of sleepiness that comes in the middle of the afternoon. Within and between sleep periods, there are predictable cycles of brainwave activity. The timing of the beginning and end of a sleep period is also intimately connected with the timing of our secretion of hormones, the level of arousal of our cardiovascular system, immune system and metabolic functioning and integration of our cognitive capacities. Without good quality sleep, these systems become poorly modulated and dysfunctional over time.

I disagree that we must understand sleep as one or the other. I believe we must understand sleep — and everything else — as both particles and waves. We are bio-chemical, bio-electrical critters.

Good sleep correlates to brain activation patterns (as measured by EEG) that are reasonably balanced (left-to-right and front-to-back) and harmonized (low and high frequencies in a good proportion to one another throughout the brain). Balance and harmony are required especially in those brain areas that generally function for the purpose of internal processing and reception of external stimuli: the temporal, occipital, parietal and midline (or corpus callosum) areas.

Of course, trauma and chronic stress (or prolonged periods of stress) get the brainwaves off track. Brainwave optimization gets them back in harmony.

I hope that someday, brainwave optimization will be inexpensive, widespread, and routine in our culture. What a world that might be, with everyone’s brains functioning at their best all the time!

Craniosacral therapy, brain waves

Confession: I am a brain geek. I’ve been lucky enough in this lifetime to have worked for 3 years with Nina Davis, craniosacral therapist extraordinaire, and I can’t thank her enough for sharing her work with me.

CST is usually subtle. The one time it wasn’t subtle was when she worked on my locus ceruleus, a “blue spot” in the brain stem that is affected by trauma. When it opened up or unfroze or however it changed, I experienced profound, deep relaxation with no internal images or dialog. Just deep black restful awareness. It was like bliss.

I recommend CST for all trauma survivors. Trauma rewires the brain in a dysfunctional way, and your full recovery depends on you (with whatever help you can get) rewiring it back to a healthy state.

(Besides this, Nina has shown me how acutely a person can develop her sensory acuity, to the point where she’s aware of tiny structures and processes inside her own brain and body and in mine as well, using her fingertips and awareness. She’s just brilliant, like a Bene Gesserit from Dune. I have some perception of my energy body and can feel shifts, but she’s got the detailed inner anatomy down.)

I’ve read articles about scientific studies of long-time meditators that concluded that  meditation affects your brain waves in a positive way. I  believe it, based on 6 months of daily meditation. I experience my energy field differently, although my physical body is feeling pretty good too these days. It’s as if my brain waves are oscillating in more synchrony than before, which is pleasant and self-reinforcing.

I am very curious about brain waves. They are bioelectricity, and there are machines that give you visual feedback of your brain activity. Here’s what I know (from reading A Symphony in the Brain and Wikipedia):

  • Brain waves correspond to mental states, and we usually experience a mixture of states.
  • Delta waves predominate when you’re asleep. They’re at the lowest hertz, 0-4.
  • Next higher, theta waves occur in the hypnogogic state, when you’re falling asleep or waking and your mind feels pleasantly fuzzy and untethered to waking life. When you visualize something, and when you inhibit/repress, you’re in the theta wave range, 4-7 hertz. Associated with relaxed, meditative, creative states. Healing of trauma occurs in this state, where you unrepress traumatic memories by reimagining the trauma as a witness, not a participant, which makes it safe(r).
  • Alpha waves, 8-12 hertz, were discovered first, thus alpha. You can access the alpha state by imagining space inside your body, such as the space between your eyes, or bringing your attention to how your body feels. Occurs with relaxation. More accessible with your eyes closed; opening your eyes can bring you out of it.
  • Beta state, 13-30 hertz, is often referred to as normal waking consciousness. These waves anre active when you are mentally aroused, or having a conversation, or feeling anxious. Ask someone to solve a math problem, and they’ll be experiencing beta waves (so will you, probably). Interestingly, people with ADHD have too much theta in proportion to the amount of beta waves that they have. Retraining consists of lowering theta and raising beta from 9:1 to 3:1. Body movement usually takes you out of beta.
  • The new kid on the brain wave block, gamma waves (25-100 hertz), weren’t measured until people began using digital rather than analog EEG equipment to read brain waves. Studies of Tibetan monks with over 10,000 hours of meditation experience conclude that gamma waves correlate to transcendental meditative states. Also occurs during synesthesia (feeling a color, seeing a sound, etc.). Gamma may signify “binding” of neurons into a network. (Hmm, I’ve heard  that neurons that fire together, wire together. Could gamma be where they wire together? If so, it’s prime territory for learning.)

I would love to have a portable EEG machine and electrodes like Ken Wilber uses in the YouTube video where he shuts down his brain waves. It would be fun to play with and learn from. One researcher claims that each hertz is associated with specific mental activity. That would be fun to experiment with!

I wonder what we would see if both Nina and I were hooked up to EEG machines when we were doing craniosacral therapy. What happens when I’m doing yoga, meditating, drawing, petting my cat — what states occur?

I’ve also learned that you can get a “brain tune-up”. A company called Brain States Technology (with three affiliates in Austin at present) uses a new strategy for working with EEG readouts and improving brain functioning. Rather than using a medical model (specifically retraining the brain not to have epileptic seizures or ADHD), they simply show you how to optimize your brain waves, right to left and front to back. So, for instance, you might have less delta and theta when awake, and more beta in the left hemisphere and more alpha in the right.

I’m gathering information and considering doing it.

I’m interested in increasing my gamma waves, which may signify a mental state called “unity of consciousness.” The jury is still out on this (and scientific juries take a notoriously long time to agree on things).

In the meantime, the man who brought us the Delta Sleep System CD has now created one to optimize gamma waves, Gamma Meditation System. I’m ordering it.